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Support #46

Review Board

Added by Amy Thomas almost 12 years ago. Updated over 8 years ago.

Status:
Closed
Priority:
Normal
Assignee:
Redmine Admin
Category:
Data documentation
Start date:
04/30/2012
% Done:

100%


Description

Good day! I am at the University of Alabama at Birmingham. We are applying to our Institutional Review Board for designation as "non-human data" to do secondary analyses on the BHPS data set. Non-human data requires that any personal identifiers are removed and that the registered user will never have access to any code that may put the identifier and data back together.

Per the Review Board's request, I am struggling to find indication in the BHPS User's Guide, or
elsewhere, that personal identifiers were removed from the data set. Our Review Board suggests this could be a list of the variables OR a
statement that there are no identifiers.

The one indication I DID find, "names and addresses are separated from
substantive data in both its computer & paper records" on page A4-13 (User's Guide) does not placate our Review Board. In their words, "This is about how the data were collected, not about how the data will be
provided to users afterwards. There should be something about how the
data (already collected) will be shared."

I sure appreciate any help,
Amy

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