Support #1411

Update to #1349: Accessing data with METADAC access

Added by Kevin Brennan almost 2 years ago. Updated over 1 year ago.

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Hi there,

On May 26th I raised issue #1349 to enquire about linking UKHLS genetic and DNA methylation data from the European Genome Phenome Archive, which I had been granted access. These data are stored at EPA under the accession: EGAS00001001232.

As I explained in my last post, the methylation data, EGAD00010001521, is virtually useless as it is provided at EGA, because it cannot be linked
to any other data type. The availability of this data at EPA is therefore misreported.

Anyway, In May, you got back to me and let me know that in order to link the UKHLS DNA methylation Illumina EPIC Array data (EGAD00010001521) to UKHLS imputed GWAS data (EGAD00010000918), I would need to apply for access to the data at METADAC. I have done this and have now been approved for access to the data needed to link these datasets. Dr Stephanie Roberts, Head of METADAC Secretariat, let me know yesterday that she has sent you the notification of approval to Understanding Society.

Can you please let me know how I can now access the data? I have not received any instructions as to how to do this, so I needed to open a new issues. At this point the administrative process to access these 'publicly available' data has taken over a year and has involved emails with at least five people.

Could you please let me know how to access the data now that I have been granted METADATA access?

Best wishes,

Kevin Brennan

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